fbpx

Get on the list! Find out about new posts, contests and more.

Please enter your name.
Please enter a valid email address.
Something went wrong. Please check your entries and try again.

My life living with EoE

What is EoE you may ask, well the official name is Eosinophilic esophagitis and don’t ask me to pronounce it because I can’t. I usually have my sister say it for me 🙂 and let me just say it sucks! It’s confusing and interferes with life at the worst times. I was diagnosed about six years ago.

May 17-23 is National Eosinophil Awareness Week, so I thought I would tell you a bit about what I have.

ribbon-edu-apfedMy journey started with food getting stuck in my throat. It would cause this painful discomfort as I try to swallow food, it happened from time to time, but I blew it off because it was more discomfort than life-threatening. I figured it was just heartburn or something. Well, one day my husband and myself were at this fancy fundraiser having a nice dinner, and I had this sensation that I was choking, but oddly I could still breath. I went to the bathroom and tried to throw up or swallow the piece of steak that was stuck, and it just wouldn’t budge. About after 15 mins (well ok it may have only been 5-10) I was able to toss it up but wow what a way to kill my makeup for the night, my eyes were watering and I was sweating so bad trying to figure out what was going on. So not fun when you are wearing a nice ball gown! So the following Monday I made a doctor appointment, it was a GP doc, so he quickly turned me over to a GI doc. After an appointment and endoscopy/biopsy they determined I had EoE and GERD… kindly the doc wrote down what I had because even after he said it 2 times I still wasn’t sure what the heck he was saying.

Eosinophilic esophagitis (EoE) is an allergic inflammatory disease characterized by elevated eosinophils in the oesophagus. Basically, your body attacks itself. In my case, my esophagus is forming rings and closing itself.

Now I should also mention there were a few more symptoms developing up to this point too. I always just chalked them up to being a working mom of 2 kids (one with special needs) and knew I wasn’t eating the best I could along with some life stress mixed in. I was fatigued, I woke up many mornings feeling nauseous, I had more than average bouts of diarrhea and I was having a hard time getting along with life in general. I remember one work trip where I had to excuse myself from our morning team meeting to go throw up, I can’t even imagine what my client thought of me. I’m pretty sure she thought I was out drinking and parting all night, yea that was an embarrassing time of my life. At the time, I didn’t know EoE so I couldn’t even explain why I was this way. On a different occasion we went out for my sister’s birthday, and I offered to be the designed driver. Well thankfully sis didn’t drink much because I was so sick I couldn’t drive home and she even had to pull over on the expressway so I could up-chuck the popcorn I had eaten. How ironic right, the designed driver is the one that has to throw up on the side of the road… we still joke around that story from time to time.

After I had received news of the EoE diagnosis, I was referred to an allergist. EoE is usually caused by food allergies, so now it was time to try and figure out what those were. So the results came back… allergic to wheat, soy, beef, dairy, and sesame. WAIT what??? I have been eating these items all my life, and NOW I was allergic to them (I was 36 when I found this out). It wasn’t making sense to me. But as I have learned this disease doesn’t make much sense. I was sent home with a few pamphlets, an epi-pen, inhaler and a prescription for Lansoprazole.

So here I was, having to learn to eat all over again. I challenge you to find many foods in a grocery store without wheat, soy or dairy. The only way you can is by choosing whole foods, and that is what I had to do. There are no more meal shortcuts, no going through the drive-thru anymore. Nope, everything had to be made from scratch. I will admit it I HATED it at first, everything was so foreign and frustrating to me. I was learning all these new ‘alternative’ flours that I have never heard of in my life. But the learning has paid off. My health has improved and I feel so much better than I did a few years ago. I used to get colds almost every week during the winter season and this past winter I think I only had 1 bout of the sniffles.

I have stopped taking the Lansoprazole. 1) it’s expensive; 2) It’s not fixing the problem just temporary fixing it; 3) I really don’t like to be dependent on medicine, plus that medication has side effects too. I had one doctor tell me it’s ok to be on that for life, another said you should only be on it 2-3 years or it will destroy your stomach. Another reason this disease is so annoying, doctors don’t even know what the correct course of treatment is. So I have been taking care of myself through food, and I’m getting better, I find it so much more easy to think and concentrate on work. I still have good and bad days, and sometimes this disease is very hard to figure out cause it changes!!! I took another allergy test about a year and a half ago, and it revealed that I should also stay away from tree nuts and eggs. I know I need to go again, but I have been putting it off. In order to tell if anything is truly working you need to have a scope done and then more allergy testing, after 4 years of this cycle it gets kinda of annoying.

Now I’m an internet junkie, and I have been reading and reading everything I can on EoE (and there isn’t much!). Trying to find out why it happens and why is it becoming more and more popular. Honestly, I think it’s the same reason there is more cancer in this world, more autism, more ADHD, more celiac and that would be what is in our food supply. I think all these pesticides and chemicals we have been living with over the past decades are causing us harm. I believe that is why I am feeling better because I am using a whole food organic diet to help my body heal itself. I’m getting rid of the toxins, and my body can function better.

**NOTE: This is my conclusion after all the reading I have done and my experience. I am not a doctor or a scientist so take it as you will.**

My research has also brought me to essential oils. Recently I have become a ‘member’ of Young Living (now leader) and am using oils to supplement my lifestyle. I have been trying this for the past two years, and I have felt them give me another boost into feeling normal again. I have more energy and some of my drive back.

Currently here is what I am doing to try and tame this disease:

  • Morning:
    • 2oz NingXia Red
    • Sole or Apple Cider Vinegar in water, I switch these up
    • Capsule of DiGize and JuvaFlex Essential Oils (usually a few drops of each and then I fill the capsule the rest of the way with grapeseed oil)
  • Afternoon:
    • Young Living Master Formula (like a multi-vitamin)* – I will admit that I sometimes skip this as it’s 4 pills and those can sometimes be hard to get down
    • if I am feeling sluggish, another 2oz of NingXia Red
  • Evening:
  • Throughout the day
    • eating whole organic foods
    • making meals from scratch**
    • Trying to eat well-balanced meals with lots of veggies
    • Diffusing Essential oils to uplift my moods
  • Exercising – Trying to make it to Zumba at least 3 times, plus I have a dance class once a week.

Yes, many of my supplements are from Young Living and they contain essential oils. When I was researching different supplement companies this company’s standards really stood out and I feel I can trust what they put in their products. Some companies are pretty scary with the fillers they use. Check out Young Living’s Seed to Seal process here.

**I have also discovered Wildtree which has organic allergy-friendly meal starters, so they have been giving me a few shortcuts again. Their freezer workshops are such a time saver!

I’ve also learned to try and change up my schedule when I have a flare-up (when my symptoms act up). I have learned to try and take it easier, to do activities that aren’t as stressful. I do think stress is a big trigger of my flare-ups.

If you have recently been diagnosed, I am so sorry. This disease is a huge pain in the ass! BUT it’s not the end of the world, it can be managed, the key is to figure out what works for you. Everyone is different, and that is what makes it hard to find what will tame your system. Have you been living with EoE please post any tricks that you have been using in the comments, I’m always for other ways I can help my health.

For more information on EoE, please see APFED.

To help with a cure please make a donation to Cured Foundation.

 

House plants that can improve your air

Best Houseplants to Purify Your Home

When it comes to bang for the buck, houseplants earn their keep. From lilies to snake plants, houseplants purify the air and look good doing...
Himalayan crystal salt is far superior to traditional iodized salt. Himalayan salt is millions of years old and pure untouched by many of the toxins and pollutants that pervade other forms of ocean salt. Detoxifies the body by balancing systemic pH.

You may have heard of the benefits of Himalayan Salt lamps but what about Sole?

Be sure to read till the end to get entered into the contest! For years we have been taught salt is bad for us. While...
how to limit kids internet

Need to control your Kid’s Internet Time? – UnGlue Review

So as the mom of two teens I have been faced with the chore of how to tame their internet use. We had tried a service...

Jen

Hi! I'm Jen, and I love teaching others how to live a toxic-free life. It's time to ditch those chemicals and get back to better wellness.

35 Comments

  1. Brandi T on December 11, 2016 at 11:15 pm

    I have EOE. I have delt with the whole food getting stuck issue. It all started 6 years ago just found out last year that I have EOE. And found out this year I have food allergies and am still trying to figure out if I have more food allergies. How did they test you for the beef?

    • jen on December 15, 2016 at 4:00 pm

      I’ve had a few different allergy tests done. Some where from scratch tests and I have also done some with biometric testing done from a holistic nurse.

  2. Kyra on February 28, 2017 at 9:09 pm

    I was recently diagnosed with EOE after having stomach problems my whole life! It was a relief to understand what’s wrong but you’re right – a total pain! I’ve been eating a whole-food plant based diet. I have the same allergies as you. Soy, dairy, peanuts, corn, basically anything GMO, chicken & beef. Although I’ve found that eating grass fed meat is much better, because those cattle aren’t fed soy or wheat like the normal meat industry cattle. I wonder if that would make a difference for you! But I’m totally in the same boat. I’m sorry! I just met with a naturopathic dr today and will be trying some probiotics and enzymes to help heal my gut/digestive tract since 75% of your immune system is in your gut, it’s likely coming from a damaged digestive tract! If you haven’t looked into doing some digestive healing that might help :). I like Dr. Josh Axe website!

    • jen on February 28, 2017 at 10:45 pm

      Yes I have found grass fed beef is better! I’m also noticing that anything with pesticides on it makes me flare up. Hopefully the Naturopath can help you find some solutions,

      I like Dr Axe too… I’ve been switching between his probiotics and Young Living’s.

      I see you have a blog too so I am going to go check that out. Thanks for posting 🙂

  3. Brooke on April 4, 2017 at 9:49 am

    Hello. My son has eoe. He is 18 months. Ppi for two weeks. It is helping him sleep better, but still in pain. Still haven’t found all of his reactive triggers. For instance yesterday he reacted to dairy free, soy free yogurt. I am desperate to get him off of medication and start healing his body. Can you give me some oil tips on where to start? I have used digize on him since 6 months to help the hard tummy at night. However we are still having major throat issues. He is losing weight likd crazy. If we don’t figure something out I am afraid they will put him on a tube.

    • Jen on May 1, 2017 at 11:00 am

      Hi Brooke, I will give you an email.

  4. Caroline Mburu on April 9, 2017 at 12:23 pm

    Phew I stumbled upon your blog and you described my experiences to a T. Thanks for sharing your journey. I too started using Essential it’s or this reason and I am thankful to say I stopped using ALL my anti-acids. PS I’m also not a medical professional, with that said I find Digize and Lemon oil helped me the most. I’ll add the probiotics too.

    • Jen Rogers on June 20, 2017 at 8:59 am

      Hi I have a friend who has EOE, I am curious if you use Digize…internally or topically? She can’t eat anything with Citric acid.
      Thanks
      Jen

      • Jen on June 20, 2017 at 9:16 am

        I take DiGize internally… few drops in a capsule and then fill the reset of the capsule with grapeseed oil.

  5. Lori on July 28, 2017 at 3:40 pm

    Hi Jen. Just stumbled on your website. I was diagnosed with EOE in February. I’m seeing a naturapathic and taking many supplements and waiting for results of a food intolerance test. GI dr. pushes PPI’s which I tried and don’t want to stay on. I’ve seen an allergist for food sensitivities and tried an elimination diet which really didn’t help. I’ve lost so much weight, so I have an appt. with a registered dietician. My first question is when they say dairy and nuts does it also mean almond milk or coconut milk, if you know? And what about nonfat dry milk powder? Thanks!

    • Jen on July 28, 2017 at 4:35 pm

      Hi Lori,
      Sorry you are going though this! Just hang in there, it takes awhile to figure out your triggers but once they are figured out it gets better. Usually coconut milk is ok, but it depends on which kind of nut allergy it is though. Coconuts are considered tree nuts, but in general those allergic to nuts usually can have coconut, but again it depends on the person. If you have a Target by you check out Ripple milk. Believe it or not it’s made from peas but it tastes a lot like regular milk. I would try and stay away from Almond milk and soy milk. I have also found that going organic and staying away from process or foods with pesticides helps me.

      If you are on Facebook, check out my new group, https://www.facebook.com/groups/athomewithjen

      I’m going to be posting different tips and some meal plans that might help you out. Hope to see you in there and let me know how your journey goes.

  6. Mandy on September 1, 2017 at 9:31 am

    I’ve had trouble swallowing food for 9 years. An test 8 years ago showed nothing, but recently found out it was EoE after 2 more scopes, prompted by food being stuck for 2 hours. I’ve not done allergy testing yet and have no idea what triggers might be. My troubles seemed so random before that I could never pinpoint what might be causing it. Will that get easier? Will I be able to tell when certain foods/environments cause problems? What am I looking for? I’m also a YL member, but don’t know anything about Digize. Dr. has me on PPI for now, which I’m not excited about, but don’t feel like I know enough to quit taking it and make my own decision.

    • Jen on September 1, 2017 at 4:28 pm

      I think the allergy testing will greatly help you. I would defiantly start by eliminating the most common ones (Wheat, Soy, Dairy). Good luck on your journey and feel free to email if you want to chat.

  7. Alisha Brinton on September 14, 2017 at 12:07 am

    Hi there. I’ve suffered with EOE my whole life (I’m 33) & now 2 out of my 4 kids have it. I tested positive to EVERY grain, most vegetables & fruits, all nuts except pecans. Just for starters….it was devastating and miserable for years. I tried eating healthy, taking several different supplements that seamed like they would be promising but nothing helped at all. It wears you down so much. Finally I had a friend ask me “well what kind of water do you drink?” I was like huh? Tap water.. She gave me some information on ionized water and how when our bodies are acidic it becomes inflamed which is a breeding ground for disease.
    I was willing to try anything so she let me come to her house and fill my water jugs up—long story short, it helped my EOE about 80%! If I stopped drinking that water the allergies came back every time. I filled my water up for almost 5 years until I finally purchased a machine (you can get them for around $2k usually) I’m not saying this will work for everyone but it was truly a miracle for me & my kids. The machine is called a water ionizer. Don’t buy it from a sales rep, you will pay twice as much. Buy straight from the factory. (Learned that the hard way) The place I got mine from was alkaviva.com

    Good luck all—-maybe someday there will be a good treatment out there for this illness

    • Jen on September 18, 2017 at 9:40 am

      Interesting! We do have a Reverse Osmosis in our house, mainly because we have well water. I know this takes out the bad, but it also takes out some of the good. I’ll have to look into these systems. I’ve also been looking at Young Living’s HydroGize bottle, https://www.youngliving.com/en_US/products/hydrogize-water-bottle

  8. Eirka on October 2, 2017 at 9:48 am

    I was diagnosed last year with EOE and referred to an allergist. My food allergies came back negative so evidently no food allergies…although from reading online, it is said that some EOE allergies don’t show up on regular allergy tests since it is a delayed reaction vs. hives etc. I have had reflux since I was about 5 and I’m now 32. I am worried about being on high levels of medication due to the side effects and the fact that if I miss one day of medication my stomach immediately hurts and gives me issues. Thanks for your blog post. It helps to know we are not alone.

  9. Megan on October 17, 2017 at 6:34 am

    Hi Jen- Wow! Can I relate to this blog. I am 40 years old and still working to find all of my triggers for EoE. I have a scope scheduled for tomorrow. I am beginning to think that one of my triggers is pollen (right now ragweed is crazy high). I have done all the allergy testing, elimination diet and meds. I was good for about 2 months this summer but once fall hit, I have been beyond miserable. I was wondering if you use any YL oils on your neck? Does this help if so? I have copiaba that is supposed to be good for anti inflammatory uses. I am very new to essential oils. I am too scared to ingest any since I have so many allergies to pollen. Thoughts?

    • Jen on October 17, 2017 at 9:18 am

      Hi Megan! I hope your scope is going well. Yes, I used to have bad flare ups in Fall when high allergy season happens. I am happy to say that mine are nill to none this year! I have been working hard to heal my body and I think it’s working. Yes I have used oils on my neck and I also do take them internally… I pretty much use them everywhere 🙂 It is VERY important that if you are taking them internally that they are oils that are made for that. i.e. Young Living has a vitality line that is marked specially for internal use. To help with the fall season I take a veggie capsule of Lemon, Lavender and peppermint. I diffuse copiaba, lavender and lemon for my dog (yes my dog has severe allergies too!). Everyone is a little different and your needs will change so its great to try different oils until you find the ones that help. I also use a iTivio scanner which helps me decide which oils may help me the best.

      Get with your upline to see if she has a scanner they also should have some resources for you. If they can’t help you then please contact me and I would be happy to help, jen@athomewithjen.com

  10. Karissa on November 11, 2017 at 12:39 pm

    Hmm I wonder if this is my issues im having. Terrible esophagus pain.

    • Jen on December 5, 2017 at 12:26 pm

      It very well could be. The only sure way to find out is to get a scope done.

  11. Jill on January 9, 2018 at 10:22 pm

    Wow. Your story is so similar to my story. Such a frustrating disease because so little is known about it. 2 Nexium pills per day stop my throat from getting swollen but I really don’t want to be on the medicine because I’m worried having low stomach acid will just result in even more food allergies! I’m trying to research natural supplements. I’m going to start with a multi and a probiotic and go from there. Any advice on supplements or resources for more information? Thanks!!

    • Jen on January 19, 2018 at 8:46 am

      Hi Jill!

      Yes anything that will help heal your gut is the way to go! Do be sure to take a good quality vitamins/supplements, there are so many on the market that have bad fillers, coloring and other preservatives.

      I have been taking Sulfurzyme, Essentialzymes-4, and Master Formula which is like a multi-vitamin (you can learn more here). Sulferzyme comes in a powder form which is awesome since I still sometimes have trouble swallowing pills.

      Fermented foods are also great too!

      Everyone is going to be a little different so it’s important to see a doctor, if you have a holistic doctor near you they can do a bio-scan and see which systems are the ones that need support and that can help point you in the right direction.

  12. Nicole on February 6, 2018 at 10:15 pm

    I was recently diagnosed but didn’t really have any symptoms.. Yes.. at times it felt like a hard boiled egg wouldn’t go down well but a few swigs of water and it always did. So my doctor diagnosed me and put me on acid reduction medicine but last week all of a sudden I had this flare up. I was scared to eat.. only had broth a couple days then started to eat a little .. felt a little better.. then it kind of flared again… stopped eating.. Long story… was kind of ok today.. not bad.. then during dinner it came. It feels like food is stuck in my esophagus… right in the middle of my chest. I don’t know what to do…??? Do I go to the ER? it is almost 9pm!! Help!

    • Jen on February 7, 2018 at 8:23 am

      If you ever feel like you can’t breath or are chocking then yes go to the ER!

      I hope everything is alright. Have you gone for allergy testing? Almost always EoE is related to some kind of food allergy. For me when I do get some food stuck it sometimes helps to stand up, relax (take deep slow breaths). If you can relax yourself that sometime will ease the tension and the item can then fit down. I also apply some oils to help me relax. I hope all is well and don’t fret this is manageable, just have to find your triggers.

  13. Nicole on February 7, 2018 at 10:32 am

    Thank you Jen. I finally fell asleep last night. I could breath fine but it felt like food was stuck in my chest between my breast bones. It still feels weird. I drank so much tea with some essential oils last night.. Nothing seemed to work. But it got the bowels moving so I don’t think food is actually still there. I tried to throw up but I have never been good with that. I can’t throw up.

    The odd thing is that I never really had symptoms or flare ups or anything… I had a pain in my side which prompted the scope and then the doctor said I have EoE… So this last week is the first time I have ever had this odd discomfort. I am 50 and have always eaten everything under the sun and never had an upset stomach at all… I have never had allergies to any extent and am very rarely ever sick.

    I am going to see how the morning goes… this pressure is still there. But maybe I will work out and then see… Usually I feel like I go to the doctor and they don’t really do anything…

    • Dawn on February 24, 2018 at 7:18 pm

      Try sipping Coca Cola sometimes that will break it down enough to allow food to go down. We keep Coca Cola on hand for this. If you can not swallow liquids or producing extra saliva you need to get medical assistance

  14. Leish on February 19, 2018 at 3:00 am

    Hi Jen,
    not sure how i found your blog.. but just reading this post.. thinking this is ‘me’.. although a little different! i have had choking issues all my life, growing up in the country Australia having allergy testing which revealed similar allergies – wheat, eggs, soy, dairy and yeast. Going off wheat bread in the country was hard, grew up with pumpkin nickle bread – could bounce that bread like a ball! No dairy meant no more cheese, no yeast meant no more vegemite and thank goodness i went to school in a era that you were allowed peanut butter! Not sure what kids have these days! Being in the country also meant it was hard to source fresh fruit and veggies, so basically we ate things we shouldnt of. Thank you goodness things have moved on and now living closer to the city, fruit and veggies are readily availiable and my allergies havent changed, but my body reacting to them has got worse.. I would have my esophagus dilated every 2 years to whatever they could stretch it to possible – usually around 9mm, however after being on flexitide (swallow it – its a gas, its hard) they were able to dilate my throat to 11mm whcih was fantastic news.. and since being on gluten free diet, turmeric, kombucha – basically a high dose of probiotics my esophagus has enable to heal itself to 13mm, and the lower stricture is now 15mm. yeah!
    I have learnt i need to stay clear of wheat – so i say i am celiac but my testing has said NOT. however, my bowel now reacts as if i do.. I had some wheat (naughty) 24hours prior tonight, and its upset my gut and i choked tonight on beef.. so i wonder if i also need to add beef to the list? i think its the effects of the wheat.. So keep searching, i do recommend high probiotic diet..

    • Jen on February 19, 2018 at 10:53 am

      Hi Leish, glad you found me! and glad to hear that you are getting better. YES, probiotics are wonderful for helping with our digestive system!

      I’m the same way, my celiac test came back negative but I know I am allergic to wheat for sure! Beef is a hard one to tell, I do chock on that alot but I wonder if it’s from the beef itself or if it’s because it’s a harder thing to swallow. I do tend to say away from beef just because of that… especially if we are out to dinner.

      Keep in touch on how it’s going and what other solutions you come up with 🙂

      If you are on Facebook, be sure to check out my Facebook group.

  15. Maria Paolucci on March 9, 2018 at 8:34 am

    Hi Jen, I was diagnosed with EOE January 2018, but have been having symptoms since I was 19 (I am now 53). Stomach ulcer at 19 before they knew it was caused by H pylori, so that was treated the old school way of bland foods. Then hiatal hernia at 32. As well, my mom was “allergic” to onions, and would often get food stuck. Pepper made her gag, even just a speck of pepper. But she just blew it off as she was allergic to onions and she choked from time to time. Then my sister, who is 18 yrs younger than I (and who lives in Oregon where they have more progressive alternative medicine vs the Midwest where I live) was diagnosed with it, and she was sensitive to almonds and eggs. So it is familial, however the age differences led to uncanny timing of each diagnosis. Especially the last 2 years I found the following symptoms increasing: choking on food, especially a single pepper flake, projectile vomiting with certain foods/drinks, (which I didn’t nail down until after diagnosis), losing my “buttery” voice and sounding like I smoked 3 packs a day, and then multiple issues with having “a bug” that led to severe upper GI cramping for 2-3 hours and going from constipation to diarrhea throughout, nausea, wanting to vomit. Now I know I wasn’t sick, it was EOE, which, BTW, was suggested to me by someone in my MTHFR Support Group, and then I had a follow up endoscopy. I get regular colonoscopy/endoscopy, and apparently the last endoscopy showed EOE and pre-cancersous cells in stomach and esophagus. I have NO recollection of this from 4 years ago when the last procedure occurred, so now I have a new gastro doctor. (idiot) That’s something I would have definitely remembered. Apparently it is not uncommon among those of us with MTHFR. Ain’t life grand? I am currently sensitive to corn, oats, rice, seeds, and seafood. I have eliminated corn and oats, coconut and almonds, those seem to affect me especially, and I’ve kept a diary because the timing of the side effects varies (some 4 hours later, some 30 min, some 18 hours), but always the same side effect and same length of time of cramps/diarrhea and vomiting. I do not want to be on Prilodsec, especially with MTHFR, and am working with my holistic practitioner to find what works best for me. Throughout my life I have mostly eaten whole foods, with some exception, but no more! And I am using essential oils, (not Young Living), which are a huge help. DigestZen, Zendocrine, and others. I also take FermPlusPro as my probiotic and I love it. Swear by it. I love my beer and bourbon, and have given up bourbon because it’s just not worth the pain. But I have been able to find one domestic beer I can drink, and the rest are home brews, local brews, or German brewed. I crack up because my friends are all like “she can’t have gluten!” And I’m like….”I CAN have gluten, I can’t have CORN, OATS or SEEDS/NUTS. LOL I haven’t tried to verify rice or seafood yet. Kind of don’t want to knowing the pain (and thus lack of sleep) I’ll experience. Although I really LOVE seafood. It’s great to find blogs from fellow EOE’s to share info and advice. I am currently taking Calcifood as I ween off Prilosec. And I agree with you about the poisons in our food system….I’ve been preaching this to my friends for YEARS!!!! And long before my MTHFR and EOE diagnosis.

    • Jen on March 12, 2018 at 10:02 am

      Hi Maria! Great to hear from you. The DigestZen I think is very similar to Young Living’s DiGize… it’s awesome! I’m going to look into the FermPlusPro. Thanks for posting!

  16. Amanda on March 11, 2018 at 6:09 pm

    I just found you by chance. I was just diagnosed i think with EOE. Still waiting on the biopsy. I had the same experience as you when i found out. I stared gagging on steak expect when i was throwing up it didn’t move. It stayed. I was told to go the the ER right away. So i did. 10 hours later. And 10 hours of vomiting every 10-15 minutes later. I was put under. Scoped. And turns out he had to use a scope for a child because my esophagus passageway was smaller then the size of my pinky and he said I’m basically lucky to be alive. I’m 37 years old and have the esophagus he size of a 5 year old. I’ve lived with this issue all my life. Even seaked help when i was 17. An ENT told me the constant choking was due to having enlarged tonsils. Well. Obviously he was wrong. So over 20 years of added stress and whatever else i have done has shrunk my esophagus. But like you. As a mom of 6. I kept putting it off and convinced myself i was just eating too fast or too big of pieces. My next step is an allergy test and waiting to hear what the biopsy says. I go back to the GI SPECIALIST on the 22nd to get more information.

    • Jen on March 12, 2018 at 10:03 am

      Hi Amanda! It’s amazing how many have this disease, and how many that have been misdiagnosed or just don’t know that they are sick and its not just old age! Hope you get some answers soon!

  17. LAURA KENNEDY on March 21, 2018 at 12:56 pm

    Hi Jen,

    I too, happened upon your blog by accident and so grateful. I was beginning to feel alone. I am amazed at the various responses and ALL the similarities in my life to others. Essentially, I could just cut and paste other peoples’ responses to match my life. i recently started Essential Oils, thanks to a caring boss. Of course, I still have to be very cautious with the oils, as I have so many allergies. My allergies are so bad that when NWMH put me on a liquid diet, I had to be removed because I was having allergic reactions to something that was in the powder that they swear was so processed and grounded it wouldn’t bother me. No one knows a person’s body better than the patient!!!

    • Jen on March 22, 2018 at 9:27 am

      So glad you found us! Be sure to get the Facebook group and let me know which oils are helping you. I”m always eager to learn more ideas of what to use 🙂

Leave a Comment